Constance Ore is a retired Teacher, Choir Director, and Organist. And a formidable cook.

March 21, 2007

Filed under: — Constance at 6:26 pm on Wednesday, March 21, 2007

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After three days of the seven in this round of Chemotherapy, the treatment has taken my body of last week and replaced it with an old, tired, aching model complete with sore mouth, stomach cramps and nausea. As I have mentioned, each round affects me differently, and this one is fierce. Because of bleeding at the injection sites, I have already moved from the arms to the abdomen. I am always studying the information available about MDS, and wondering how I can avoid all of the above; the oncologist patiently explained once again that the treatment deals only with the condition since its cause is still a complete mystery. He said that in his entire time of practice, this is the first therapy (other than the stem cell transplant which is not an option for me) that has stopped the progression of the disease for any length of time. Then I inquired if perhaps the Vidaza had moved me from the initial diagnosis of MDS, RAEB-T (the most severe classification of the five levels of the illness) to level four perhaps, since the cells no longer appear to be in transition. He determined that I should gather my questions and see the doctor at the Med Center in Omaha and visit about the future and the options there. He said that while he studied all of the forms of cancer that he dealt with in his practice, he was seeing patients throughout the spectrum and at the Med Center I would be visiting with someone whose focus was just MDS.

frogs singingsMeanwhile, spring arrived at around 8:00 PM last night, and sure enough, a south wind came up after midnight and we awakened to 56 degree temperatures before sunrise. The entire day before had been cold and gray so at this hour, we are about thirty degrees warmer than yesterday at the same time. The plants in the ground must surely be confused. “Up!” “No, wait, too cold.” “Hurry, it’s summer. . . and so forth” The frogs are singing in the wetland bog down by the big cottonwood tree and the robins have started their morning chorus in earnest, so winter is certainly over; now we will see if hot dry days will come too soon. I can easily imagine the ticks and mosquitoes and gnats stirring from within their secret winter hideouts and preparing for a long and lovely feast of summer. The little wood violets should be appearing any day and daffodils and crocus will be showing up as well. This time of awakening is always such a joy to behold – it almost compensates for living in a place sans the extravagant beauty of oceans, mountains, palm and hibiscus trees and other lovely things in far away places.

(Next entry: March 26)

3 Comments »

Comment by Fiona

March 21, 2007 @ 7:01 pm

We already have one plant outside, and it’s blooming! I can’t wait to see the crocuses. And it is so wonderful to be in content-ness of Spring’s arrival. I really love how Spring have came finally. Me and my Mom are tired of Winter! And I can’t wait to have a nice new Spring and Summer, can’t you?

Lots of Love,
Fiona

Comment by irene Beethe

March 21, 2007 @ 8:17 pm

Thanks for sharing both “worlds” – the one of MDS that you are traveling through and also the new life that arrives in the spring.
You are in our prayers always and think of you often.
(If I would be a plant, I would be confused too…when is it “safe” to show myself above the coziness of the earth!)
Life goes on and for that, no matter the form, we give thanks!
Joy in Jesus,
Irene

Comment by Dick Gale

March 23, 2007 @ 3:45 pm

Hi Connie and all:

Your pressure, but our pleasure!! I like the addition of the next entry date, and the set date should certainly crank your head a bit. (In another life, I did a short community radio commentary (written out and read), and thinking of the next 3-5 topics really filled my head.)

Nice to enjoy your gradually appearing Spring there — our in Southern CA sort of crashes through, pleasant, but underlined in a worrying way by record low rainfall.

Seeking the Omaha Med Center advice sounds like an excellent idea. (There is so much these days about second opinions, variations in diagnoses, etc. A new book, How Doctors Think, by Jerome Groopman (an MD) has gotten lots of positive press, including a review in today’s (3/23/07) New York Times.)

Speaking of positives, know that you are still on the receiving end of our very strong and positive thoughts sent your way, daily by the dog and I, often by the dog and I, and this mother/my wife, Susan.

(How can a dog send positive thoughts?, you might ask. Our 30# probably/mostly wheaten terrier has been around. One of his many spiritual experiences occured when we were in a small (7 person) nonprogrammed Quaker meeting in a very rural setting where we lived in Oregon. The meeting is an hour-long circle of silence, with people speaking only when they wish. Few did at this meeting, and, as usual, at the end we all stood, hands clasped, in a circle. Quietly, our dog moved to the center of the circle, and looked up at all of us with loving brown eyes. /// More recently, late at night, when I am thinking about you and my (medically much improved) piano teacher, I will reach down from the bed and touch the top of his furry front shoulders. /// I think this is a spirital creature.

So, Spring ahead, and, quickly now, the next entry is in only three days!!

Dick, Susan, and (terrier) Booker Gale

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