Constance Ore is a retired Teacher, Choir Director, and Organist. And a formidable cook.

August 16, 2007

Filed under: — Constance at 1:21 pm on Thursday, August 16, 2007

MDS_theLongRoad.jpg
“The nice thing about rationalizing, it needn’t be rational.” This wonderful statement is lifted from a letter from my sister-in-law, and I wish it could be applied to reality checks. Tuesday afternoon was the latter, with yet another discussion about the nature of MDS and its’ incurability. According to the wisdom accumulated thus far, only a bone marrow transplant has ever effected a cure, and for myself, not even an option. “But I have been feeling so much better” I said, “and the last two rounds of Chemotherapy were morphing into more difficult experiences, so perhaps I was getting toxic.” Not necessarily, said the oncologist; it could mean that the Vidaza is beginning to lose some of its effectiveness. He reiterated that the illness is there, waiting. Thus far, he said, it has been suppressed and instead of life moving forward in a downward manner, it has been held steady on an even plane. We discussed the bone marrow aspiration that would give a new insight into what is happening within, and the decision was reached to do it after one more round of therapy since the bone marrow reading takes at least a week to complete, and the doctor felt strongly that I needed to have the Chemo immediately. Today is the third day of the seven, and it has not been nearly as severe as the past two rounds, and that has been an unexpected gift.

WeGetNoticed.jpgOn Monday, Charles announced that he needed to get an anniversary card, and I said, “Please don’t. . . I haven’t gotten you one this year.” He immediately replied, “Of course I am going to buy a card – Hallmark depends on it! And I’ll just get your card for me at the same time.” I thought, “Now that’s a new approach.” He came back later with a large bouquet of roses and two cards in blue envelopes. On Tuesday morning we opened them, and his card to me had a photo on the front of an older couple pictured from the shoulders down, holding hands, and facing the ocean. They stood on the beach in ample, well-wrinkled and well-worn bodies; he in red shorts with a huge white star on the rear, and she in a floral bikini. The card opened up and inside the message said, “One way or another, we still turn heads. Happy Anniversary!” The card selected for me to give to him had the message on the front that said, “It’s so wonderful being married to the greatest spouse in the world!” Inside, the words were, “Isn’t it, Dear? Happy Anniversary”. Thus we began this 47th year with laughter and renewed delight and thanksgiving for a wonderful life together. The children published one of those “Then and Now” sets of photos in the local Sunday paper, so we were well-remembered. Charles would say, “Onward and Upward” and I will add, “Hallelujah, Amen!”

3 Comments

Comment by Steve Ohmer

August 17, 2007 @ 3:50 pm

Dear Dr. Ore and Connie,
For the past several weeks, I’ve played music that Dr. Ore composed – on a rather wretched old Austin (1932 vintage). I vaguely recalled that at one time, you had a web site, so decided to Google and see what I could find. I’ve got two friends who have MDS, and their faith helps them through things a lot, just like yours. Katie and I will keep you in our prayers. Living with cancer, whether active or in “remission” isn’t an easy thing – I do it every day, too. I’ve marked your web page under my favorites, so will check in frequently to see how you are doing.
In Christ,
Steve and Katie Ohmer
Charlottesville, VA

Comment by Irene Beethe

August 18, 2007 @ 8:29 pm

Loved the picture of the couple on the beach! Happy Anniversary!
Irene

Comment by Sharon Struve

August 20, 2007 @ 9:40 am

Hi Connie and Charles,
Congratulations on 47 years of wedded bliss. Loved the fact that you could start it with laughter.

Rose Klintworth and her grandsons came to see me at the Taffy Shop in Estes Park this summer. I did not even know that Ted had gone to heaven. She did seem in good spirits and that was uplifting.

Tom Diorgiano retired this spring. He said to mention it to you.

Prayers are always with you. Fondly, Sharon

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