Constance Ore is a retired Teacher, Choir Director, and Organist. And a formidable cook.

August 21, 2007

Filed under: — Constance at 8:23 pm on Tuesday, August 21, 2007

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High heat and humidity encompass the days at Sanctuary; mosquitoes and spiders flourish and Monarch butterflies are beginning to gather around the thistle and milk weed plants. The spiders are especially active – the paths between trees and tall grasses appear to be prime real estate for fine dining because there are webs at face level every twenty or thirty feet. When we walk after dark we see the various species of spiders in the flashlight beams busily wrapping up the catches of the day. We carefully move around and under the web work, and keep our mouths shut just in case we miss one and find an unwelcome creature trying to get off our teeth.

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This is also the season for wildflowers; whenever I see them, I think of the person(s) who first discovered them in the grasses and delighted in their unexpected offerings of beauty in an otherwise treeless and severe landscape. The blooms we see scattered across the pasture right now bear the wonderful names of Partridge Pea, Ironweed, Snow on the Mountain, Goldenrod, Gayfeather and Blazing Star.

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I have completed my thirteenth round of Chemotherapy and with the exception of a great deal of soreness at the injection sites, all went better than expected until the sixth day of seven; then the exhaustion, nausea, etc., arrived in a manner which seemed to be my body shouting, “Enough already!” Now I am back into the routine of daily Neupogen shots for ten days and weekly blood draws until October 2, which is the date set for the bone marrow aspiration. It is hard. I do try to recall all the good times so recently enjoyed and give thanks for them, but I think the contrast makes the present reality even more difficult to pick up again. Charles fills the air with encouraging words and reminds me that he still cannot cook at all well – so onward we go. C’est la vie.

3 Comments

Comment by Sharon Struve

August 22, 2007 @ 4:46 pm

Hi Connie,
You are so valiant to endure the treatments for your illness and be so interesting in your writing to update us on such a high level. You have such a gift of expression. I am truly envious… in a good way, though. I really admire your skill. Thank you for sharing it, even on your hard days.

The wildflowers at Sanctuary are beautiful. Isn’t our Creator awesome?

God be with you every minute of everyday. Love, Sharon Struve

Comment by heidi ore

August 23, 2007 @ 6:49 am

Dearest Mom

May your days be filled with beauty – I’d watch out for that Charles guy – he is wily in his ways!

Heidi

Comment by Sheila

August 24, 2007 @ 9:23 am

Hi Connie, I stumbled across your website when I was looking up Vidaza treatments. I also have been diagnosed with MDS. I had one bone marrow biopsey that determined my illness. Then I was given the pill “revelimid”. With in days of starting that drug I had a terrible rash all over my body. That was discontinued. I chose to go to University of Michigan and have decided to go with one of their studies. I had to be off the “revelimid” for one month first. On Sept. 5 I will have another bone marrow biopsey done and then start vidaza treatments on Sept. 5. I feel so lucky to have come across your website. I have been trying to read everything I can find out about this disease and the treatments. I fall into the category of “don’t know why I have this disease”. I chose NOT to have the Bone Marrow Transplant. It wasn’t for me. I do not know anyone else who has had this disease until you. Once again I am so happy to have stumbled over your website. You are giving me lots of insight of my furture days. I don’t have the spunk that you do, sorry to say. I feel in the dumps all the time. My husband and I have been married almost 44 years. He has always been my knight in shinging armor. I must say I wish he could help me through my days ahead. He will try, but it will be hard for both of us. We have a son and his family who live in Alaska and our daughter and her family are only about an hour away. I have lost both of my sibilings to cancer. I also had breast cancer myself almost 22 years ago. However, I never had any type of chemo, so how I got MDS is surely a mystery. Any correspondence from you would be appreciated. But whatever, I will continue to read your updates. Thanks for listening to my problems, when you have as many of your own. Sheila

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