Constance Ore is a retired Teacher, Choir Director, and Organist. And a formidable cook.

April 12, 2006

Filed under: — Constance at 6:18 pm on Wednesday, April 12, 2006

Sadly, this spring season appears to be but a brief episode. Too soon, the daffodils droop under the intensely warm south winds and the summer scourge of ticks in the forest has already arrived. When I put the Frontline between the dog’s shoulder blades with its promise to ward off the nasty bugs an entire month at a time, I was momentarily tempted to place a few drops behind my ears as well. . . “How much worse than chemotherapy could that be?” was the question in my mind. All the warnings on the box about letting the stuff touch my own skin deterred me, but I do wonder a bit.

The reality of this disease and treatment can include mouth sores. What might have been a tiny white spot on the tongue in the ordinary mouth becomes an issue. So it began for me, but then it started to increase in size to the degree that it seemed appropriate to call the doctor. Whenever in life would one call the doctor for a sore on one’s tongue? “Come in, we must get a culture” was the reply, and so off to the oncologist’s office. Sympathy and a fierce mouthwash were given, the culture was sent away, and we returned home where I dutifully rinsed and swished the stuff about. It turned my tongue an incredible shade of blue, and I found Charles so I could show it to him. His eyebrows went straight up and he said, “Good grief, you have the tongue of a Chow-chow!” I said, “I do, don’t I. . . it is likely that I will soon have the characteristics of a Chow-chow as well.” (These dogs have a reputation for being fierce and unfriendly and prone to bite.) Then I read the small print of possible side effects, and the sentence which was most alarming stated that one could loose one’s sense of taste – permanently. Once again a time to consider the options; do I want to go forward taking a chance on losing my sense of taste with a mouth that is comfortable, or do I want to preserve my enjoyment of food in spite of a mouth that is unhappy?

The oncologist also decided that I needed to continue the daily Neupogen shots so on my morning trek to the clinic here in Seward, I asked the nurse on duty about mouth sores. She said, “Rinse with salt water, lots of times, it works as well as anything.” I have found that the nurses have practical advise that they willingly share if asked, and I went on, “Do you see lots of these sorts of things?” She replied, “Yes. . . you have just the one in your mouth, sometimes people have many, and just last week, someone decided to stop chemotherapy because the quality of life was reaching a point where it wasn’t worth it anymore.” I thought about that all the way home, but then the day’s walk presented a perfectly beautiful blue sky supporting a perfectly shaped cloud hanging just so over the tops of the Austrian pines that lined the edge of the forest. We stopped for a moment to admire and remember the sight of it. Each day holds many such encounters with lovely aspects of life so always there is enjoyment and that in turn engenders hope for the future.

4 Comments

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Comment by irene beethe

April 12, 2006 @ 7:05 pm

Dear Connie,

I am so glad that the Lord gave you such a beautiful view today..after many “clouds.” We planted some very little twigs yesterday, our part in keeping the earth populated with trees! Although they are nothing more than a small dormant sprout, they are an opportunity for hope. I like to remember what Luther said (I paraphrase) if the world would end tomorrow, I would still plant a tree! I think that was his statement about hope and the future.

Thanks for sharing both your experiences of sadness and hope with us. Each time you do, it provides more strength and encouragement than you can even realize!

You are in our prayers and we know that our heavenly Father holds you gently but strongly in His grasp! He’s not going to let you go! He’s there all the way.

God’s peace and love be yours tonight.

Love, Irene and Ivan

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Comment by Carol McDaniel

April 13, 2006 @ 1:55 pm

“Healer of our every ill,
light of each tomorrow,
give us peace beyond our fear,
and hope beyond our sorrow.

You who know our fears and sadness,
grace us with your peace and gladness;
Spirit of all comfort, fill our hearts.

Healer of our every ill…

In the pain and joy beholding
how your grace is still unfolding,
give us all your vision, God of love.”

(Marty Haugen, (c) 1987)

Thanking God with you for every grace filled moment of every day. From animals who love us, to nurses who comfort us, to families who encourage us, to the God who heals us…

You are loved +,

Carol

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Comment by heidi Ore

April 13, 2006 @ 9:21 pm

Mom

Jon and I got a really nice photograph from one of our Journalism professors, George Tuck. It’s a man walking alone in Soho NYC and the inscription has always inspired me –

To Jon and Heidi on your wedding –
May you always see the beauty and not the despair

You know now that I read this again after all this time I hope it wasn’t tongue in cheek – (sort of a relevant topic for today – ha!)

Anyway, I guess I will see the beauty of that inscription and nothing else – so I am thinking of the wonderful sky above the yellow house and I say go clouds! Be puffy and magnificent! Let us ponder your design.

Heidi

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Comment by Judith Hanzelin

April 14, 2006 @ 7:18 am

Dear Connie, Thanks again for sharing your thoughts, feelings and experiences with us. I agree about the salt water rinses. 1/2 tsp of salt in 1-2 cups of water. Rinse and spit. Also many of my patients found the amino acid L-Lysine to be very effective. The pills are large but taking 100mg (1 gram) a day has been found to bring relief, even for those who have many, many moth sores. I offer this to you with love and confidence! (I cannot tell you to do either salt water rinses OR take L-Lysine as that would be prescribing.) Sending you love, hope, joy and much beauty. Happy Easter! Judith

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