Constance Ore is a retired Teacher, Choir Director, and Organist. And a formidable cook.

October 7, 2008

Filed under: — Constance at 7:30 am on Tuesday, October 7, 2008

Today, the scolding voice inside my head says, “What were you thinking?!” as Sunday’s activities are reviewed. I began by going to church at Plymouth with Heidi and Zoie and Kira, then driving to First Church so I could hear Charles play a wonderful jazz setting of “This Little Gospel Light of Mine” as a postlude. Upon my return to Seward, I walked Alphie, ate a hurried lunch, and then accompanied Charles to the Alumni Organ Recital where seven of the nine players were Charles’ former students. He also played, concluding the program. (The remaining player was a woman in her early 90’s who graduated from Concordia a year before Charles was born.) This recital was a closing event for the Homecoming weekend, and it continued the inauguration of the new Casavant organ in Heine Recital Hall on campus.


Everything within the day was good. Zoie had purple highlights in her hair, and as she walked through the morning and into church, one could tell that she had that mixed feeling of both wanting to be noticed for her outre’ coif and hoping that people wouldn’t stare. My perception was that for her, the day was all about her head. For me, the music, sermon, prayers, people and celebration of World Communion Sunday were all grand. In the afternoon, the small recital hall was packed with people, and many of them were delighted to see me and give me greetings. I should have been masked to remind others that I am not as they are, but I believe I would have felt like Zoie, only a great deal more so. The entire day was one in which I went against the admonitions of the doctor concerning my immune system. Today, I have scratchy eyes and sore lungs, with coughing beginning to commence, and I have to respond to the scolding voice in my head, “I hear you!” Sigh. I had my blood checked this morning, and the readings indicate a continued slow decline. This is not unlike walking along a narrow path on a cliff with a sizable drop on one side. As one commences, the path narrows almost inperceptibly, and the sense of unease grows as the walk continues. There is no stopping, no turning around, and no signs that a broader way lies ahead.

3 Comments

Comment by LaVonne Monson

October 8, 2008 @ 8:52 am

Just want to “drop in” to tell you how much we think of you and Charles as you journey ever courageously through each day with this mysterious illness. We continue to pray for your healing as you do all that you can muster to stay the course of that process.

Connie,YOU ARE AN INSPIRATION! As you write, you bring to us a deepened awareness of much that we often take for granted. I smiled when I read of your analogy of your grand daughter’s concentrations regarding her purple hair– and how we,too, can miss the “main” events by bountious distractions–. (There is a Biblical reference here, but I would need to be more scholarly to be specific!):)

Loved the “garden picnic” idea, staging by Charles! Creativity is one of the major spices in life, it seems–and it is a “Charles” specialty, isn’t it?! What a paradise indeed! Some French paintings come to mind!

Today we are going with our oldest son and family to meet up with our youngest son, Eric, who is now performing with Celebrity in the Western Med. Even though we will be far away, we will be keeping you in our prayers. May you find hope and strength in the knowledge that you are loved.

Just want you to know that we continue in our hope that you will be experiencing better health each day.
LOVE TO YOU AND CHARLES,
LaVonne and Larry Monson

Comment by Jim Marriott

October 8, 2008 @ 10:49 am

Connie,

I truly hope that the side-effects of the busy Sunday are short-lived. Kristi and I were so glad to see you at the concert Sunday afternoon and so delighted to have you meet Joel!! I continue to hang on your every word written here, and we continue to hold you in our prayers.

Ryan and Anne Meyer send their greetings as well, we are with them now in St. Louis.

Much love,

Jim, Kristi, and Joel Marriott

Comment by heidi ore

October 8, 2008 @ 6:49 pm

O beautiful mother whom I adore –

This evening I am pondering the title of your site- Living with MDS, with an adamant emphasis on Living!

I truly appreciate your words full of hope, wonder, and grace – as a human on the planet, you are fantastic – as a parent, you are magnificent. I turned 45 this year and still I learn from you, admire you, and try to be like you – One day, I hope to get close.

“There are two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.” Albert Einstein

Miracles abound!

Love Heidi

Thank you for your words and most of all your living

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